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Published 02 September 2010 - Hip fracture 'was excruciating'
Published 02 September 2010 - New breast cancer campaign is launched
Published 02 September 2010 - 'No excuse' for 'sub-standard' hip fracture care
Published 02 September 2010
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Social media directory
Social media tools such as YouTube and Facebook are increasingly being used within the medical community to help spread new information, build relationships and promote support. Use this EPG Patient Direct social media directory to stay connected and share information with fellow patients/caregivers.
Patient Communities (branded) | Patient Communities (non-branded) | Blogs | Facebook
Patient Communities (Pharma/Healthcare branded)
These communities have been created by a pharma/healthcare companies to help connect you to others dealing with similar situations.
- Accu-Chek Diabetes Link
Diabetes Link is a Website dedicated to helping people with diabetes gather information, learn important facts and enjoy healthy lifestyles. - HER Story Community
You are not alone. Created and provided by Genentech BioOncology, the Herceptin (trastuzumab) HER Story Patient Ambassador Program connects you with other women who are fighting HER2+ breast cancer each and every day. When you connect with other women fighting breast cancer, you share the journey and may find support. - Epilepsy Advocate
Epilepsy Advocates are a community of people and their families living with all types of epilepsy. Get to know the inspirational stories of Epilepsy Advocates, people like you who are finding ways to take control of their epilepsy and their potential. - MSWatch
MSWatch.ca provides the Canadian Multiple Sclerosis community a place to openly learn, discuss and share anything and everything to do with MS. Living with Hemophilia
Bayer HealthCare LLC developed this Web site to share some practical tools that we hope will help you manage life in today’s busy world. Although hemophilia is part of your life, we want to make sure that hemophilia does not become your life. This Web site is designed to give you time-saving tips and strategies for living with hemophilia, and making life a little easier. - MS Gateway
If you live with Multiple Sclerosis and want to meet like-minded people, the MS Gateway Community is the place to be. This online community puts you in touch with other people living with MS so you can discuss ways of coping with MS in everyday life and at work. GIST Earth GIST Earth is a global, interactive social network dedicated to connecting the GIST community from around the world.” Created by Novartis Oncology, modeled after their successful CML Earth. - BETAPLUS
Support community/program for Bayer’s Betaseron featuring a peer mentor program. - Alli Circles
Support community for Alli, weight loss product from GSK. - DepNet
DepNet is a Community on the Internet where people affected by depression and related diseases have the opportunity to meet and exchange experiences as well as finding information and help. DepNet is also a tool to support and help relatives.” - Walking Spree
WalkingSpree is focused on delivering a best-of-breed online wellness program by incorporating the valuable features from online pedometer based programs, online social networking programs and online weight-loss programs. - PKU.com
Join the online Phenylketonuria (PKU) community and interact with others regarding topics specific to PKU. Gain an understanding of the thoughts, ideas, questions and needs of those with PKU and learn about treatment options. You can even add your voice to the dialogue! - Voices of Diabetes
Novo Nordisk site that allows diabetics to share their stories and comment on others’. - Walking Spree
WalkingSpree is focused on delivering a best-of-breed online wellness program by incorporating the valuable features from online pedometer based programs, online social networking programs and online weight-loss programs. - We Keep Moving
A disease awareness campaign built through community outreach and involvement. This is a new twist on patient testimonials, designed as a nationwide tour to document the stories of people living with MS with the objective of building a community to empower these people to continue to live their lives--to overcome obstacles and move on.
Patient Communities (non-branded)
Created with no direct control by a pharma or healthcare companies
- Accidental Sisterhood
We are dedicated to educating women on all things Pelvic Floor Health related. We provide info on overactive bladder, incontinence and other conditions that over 34 million women deal with daily. - ACOR
Association of Online Cancer Resources includes a number of online support communities including sites such as Oncochat.org. - Addiction Suvivors
AddictionSurvivors.org is a not-for-profit organization (501c3 tax exempt status pending) dedicated to providing peer support communities for those with addiction disorders and their families and friends. These forums are funded in whole by individuals whose lives have been touched by addiction in one way or another. - ADHD News forum
Join our support group at the ADHD message boards with over 16,000 topics of discussion. Ask a question or connect with someone who is coping with ADHD like you. - The Advanced breast cancer community
The Advanced Breast Cancer Community is a comprehensive information source and online community solely dedicated to the needs of advanced (metastatic) breast cancer patients, caregivers, family and friends, and health care providers. - American diabetes association
Discussion board featured on diabetes.org, the home of the American Diabetes Association. - Ask a Patient
Patient provided drug ratings and reviews on almost all prescription products. - Autism 151
Autism 151 is a campaign to pull our community together and offer a brighter, more positive view of autism.” Features videos shared by the community. - Bewell.com
BeWell.com has unique, expert-guided communities where you have access to authoritative information about health topics that matter to you. You’ll participate in peer-generated conversations, connect with other people who have similar experiences and interests, and interact with well-known, highly regarded healthcare professionals. - Body1
Body1 is a premier medical education and marketing company that educates targeted populations and provides interactive marketing tools for pharmaceutical, medical device manufacturers and biotechnology organizations. - BreastCancer.org
Breastcancer.org is a nonprofit organization dedicated to providing the most reliable, complete, and up-to-date information about breast cancer. - The Canary Report
The Canary Report is the leading website dedicated to news, information and inspiration for people with Multiple Chemical Sensitivity and those who love them. - CancerCompass
Within CancerCompass you’ll find a thriving community of more than 15,000 people connected to the latest cancer news, cancer information, decision support resources, and most importantly, each other. - Cancer Survivors Network
Discussion boards are used to post questions, answers, or comments about various aspects of your cancer experience such as diagnosis, treatment, relationships, or taking care of someone with cancer.” This is part of the American Cancer Society’s website at cancer.org - CancerTV
Tthe destination to share information and learn about cancer across the web. We encourage you to post your own original programming and share your experiences in our members’ forum. Institutions can also contribute content, such as educational videos, for broadcast to our global, connected audience. - CareFlash
CareFlash provides a common place on the Internet, to and from which people may submit, retrieve and share information and well-wishes surrounding a loved one’s health circumstances. - Circle of Sharing
Circle Of Sharing helps cancer patients and their caregivers get personalized information about the disease, and share that information with family and friends.You can create a Circle Of Sharing for yourself, or create one on behalf of someone you’re caring for. - Crohn’s and Colitis Foundation of America
Non-profit foundation site featuring discussion groups and forums - CureTogether
CureTogether helps people anonymously track and compare health data, to better understand their bodies, make more informed treatment decisions and contribute data to research. - CysticFibrosis.com
We are patients and families from all over the world, sharing our experiences with CF and gaining power over our disease and our futures. We are joined together to grow our knowledge and reach amazing goals. Please join our community and our movement–together we are building knowledge and reaching for a cure. - Daily Strenght
Most everyone has a serious personal challenge themselves or has someone close to them that does. DailyStrength is a collection of safe, anonymous, online support groups focused on over 500 specific challenges to help people overcome their personal challenge or support a loved one through theirs. - Depression Forums
Depression Forums.org is a community support website soley dedicated to Depression and Mental Health. - Depression Tribe
While professional therapy and medication are a critical part of treatment, journaling and “talking” with others can offer many a chance to gain insight into their problems. DepressionTribe offers members a place to share stories, encouragement and friendship. - Depression Understood
Depression Understood offers many ways in which like-minded people can communicate with each other and offer peer support to one another. - Diabetes1
Created by Body1: Body1 is a premier medical education and marketing company that educates targeted populations and provides interactive marketing tools for pharmaceutical, medical device manufacturers and biotechnology organizations. - Diabetic Connect
We’re all friends here—friends who know what it’s like to live with diabetes. We make it easy to start conversations, share recipes, ask questions about diabetic products, and much more. Our hope is to give you the support and information you need to live a long healthy life with diabetes. - Disaboom
For people with disabilities, Disaboom’s lifestyle articles, blogs, forums, and health information provide shared knowledge about SCI, cerebral palsy, fibromyalgia, multiple sclerosis, and other disabilities. Whether you’re an amputee, caregiver, disabled veteran, or interested in exploring adaptive sports, accessible travel, or any other disability-related topic, welcome! - dLife
dLife is the only integrated consumer/patient education and marketing platform that effectively targets and engages the diabetes community. dLife has become the premiere model to help companies communicate, educate and interact with millions of diabetes patients, consumers and caregivers. - DoubleCheckMD
The first-ever online medical search technology that empowers users to quickly and easily find accessible, accurate information on drug interactions and their side effects. - eDrugSearch
eDrugSearch.com launched in January 2007 as a specialized search engine for Americans interested in purchasing safe, low-cost prescription drugs from prescreened international pharmacies.” The site also features a community where users can rate drugs and also discuss various treatments. - eHealthMe
eHealthMe is a platform to share and make use of drug outcomes in real world and in real time. Our user reports of drugs and conditionshave surpassed those on WebMD and other major health care websites. On eHealthMe, health professionals and patients can study how millions of people use their drugs, and change the way how drugs are prescribed or taken. - Epilepsy.com
Epilepsy Therapy Project seeks to improve incentives and encourage commercial investment in new therapies. Acting as both a catalyst and clearing house for innovative research and the early commercialization of new therapies, the Epilepsy Therapy Project brings together financial resources, scientific insights and business expertise from leading academic and commercial industry participants. - Face to Face Health
FacetoFace Health is a healthcare social utility designed to connect people directly together with each other via our HealthMatch system.” Interesting angle to connect individuals versus a group discussion. - FindaDoc
The FindaDoc solution started as a simple concept: provide a fair and credible resource that is easy-to-use and that provides honest information about America’s doctors, to help support you in your healthcare choices. - Healia
Online health community and support groups where you can anonymously share health information, find people with similar health interests, ask questions of peers and health professionals for free, and earn Healia Points for helping others. - Healing Well
HealingWell.com is a thriving social network and support community for patients, caregivers, and families coping with the daily struggles of diseases, disorders and chronic illness. Our goal is simple….to help people on their way to “healing well”. - HealthBoards
Provides a unique one-stop support group community offering over 150 message boards on various diseases, conditions, and health topics. The HealthBoards community is one of the largest and most dynamic on the Web, with over 400,000 registered members, and over 3 million messages posted. - Health Centre
Discussion groups for multiple conditions from acid reflux to skin care. - Healthgrades
Providing ratings and profiles of hospitals, nursing homes and physicians to consumers, corporations, health plans and hospitals. - icyou Health Videos
The Web’s only destination focused solely on bringing you the whole world of healthcare video. From important medical breakthroughs to the latest diets, from recipes for people with diabetes to blogs from cancer patients, icyou is healthcare video. - Iguard
We are changing the way that doctors, pharmacists, researchers and patients like you communicate about drug safety. We help you stay informed about your medications and help researchers access valuable feedback that can help improve how medications are used.” Includes patient reviews of pharma products. - Im to young for this
Unlike every other age group, there has been no improvement in the 5-year survival of young adults since 1976. This is not OK. Young adults also face unique issues that are not currently being met by the current continuum of care including fertility, isolation, insurance, dating/sexuality, financial assistance, education, employment and age-appropriate peer support such as social networking, both off and online. - Inspire
Inspire connects patients, families, friends, caregivers and health professionals for health and wellness support. Inspire works withtrusted health partners to build safe and secure health and wellness groups. - Juvenation
Juvenation is a social network created by the Juvenile Diabetes Research Foundation (JDRF) especially for people with type 1 diabetes. - Knowcancer
The Know Cancer Community was created to unite the World in the fight against cancer. It is a place where you can connect with others, share your stories, and find support. A place where you can seek inspiration and provide empowerment. - Medhelp
MedHelp empowers over 7.5 million people each month to take control over their health and find answers to their medical questions. MedHelp has over 15 years of accumulated information from doctors and other patients across hundreds of conditions. - MD Circle
The best way to get credible informative reviews is to ask your family, friends and trusted doctors. This can be an issue if you have a sensitive matter that you don’t want everyone to know yet you still want a trusted referral. MDcircle works the way you do by building a trusted network among your friends and your doctors not some strangers. - MD info
MDinfo is a health information resource that empowers visitors to post questions and receive responses from Health Experts in a variety of specialties. - MD Junction
MDJunction is an active center for Online Support Groups, a place where thousands of patients meet every day to discuss their feelings, questions and hopes with like minded friends. - Metabolic Body Odor Community
Community entirely focused on support around metabolic disorders that cause body odor. - My Breast cancer network
Breast cancer focused information and support community that is part of the Health. - My Cancer Place
My Cancer Place is the only place to join a community of people with cancer, share information, give and receive support, learn from the experiences of others, and create a free web page with text and photos that you can change anytime. - National Keratoconus Foundation Forum
Through this forum and an email-based discussion group, KC Link, we provide information and support for people diagnosed with keratoconus,and their families. - NetDoctor
NetDoctor.co.uk is a collaboration between committed doctors, health care professionals, information specialists and patients who believe that medical practice should be based on quality-assessed information and, wherever possible, on the basis of the principles of evidence-based medicine. Over 250 of the UK’s and Europe’s leading doctors and health professionals write, edit and update the contents of NetDoctor.co.uk - ObesityHelp
Welcome to ObesityHelp, the nation’s preeminent Bariatrics support community for patients and professionals.1998, ObesityHelp has been at the forefront of patient support and education, providing our over 600,000 members with the most comprehensive industry information available. - Organised Wisdom
The first human-powered, doctor-guided search service for health. - Our beautiful minds
This website is dedicated to people dealing with schizophrenia, schizoaffective disorder and other related conditions. That includes the people suffering from them and also those who love and/or care for them. - Patient Power
Patient Power is devoted to helping you and your family through knowledge, to get the best medicine and return to good health. - Patients like me
Unbranded, 3rd party company, supports ALS, Parkinson’s, MS, depression, and a few others. One of the largest and most active patient support sites in the world. - Patientsville
Patientsville.com is Your #1 Information Source of side effect information. Our mission is to provide You with the best knowledge about side effects of prescription and off-the-shelf medications. - Planet Cancer
A community of young adults with cancer. - PolioToday
PolioToday.org is published by the Salk Institute for Biological Studies. This website is designed to raise awareness of post-polio syndrome and to be a resource for polio survivors. Dr. Jonas Salk, who developed the first safe and effective polio vaccine, founded the Salk Institute in 1960. - Prescription drug info
This community was started in early 2005 with the goal of providing an unbiased source of personal experiences with prescription drugs. The idea for putting this together was sparked by the fact that there did not seem to be an easy to use site out there for the average person to learn about and share their experiences with various medications. From the very first design to how the site operates today, simplicity and community have been our focus. - Psych Centre
The Internet’s largest and oldest independent mental health network, providing Teliable, trusted information & self-help support communities for over 13 years. - Rareshare
Unique social hub building communities for patients, families, and healthcare professionals affected by rare disorders. - Rate MDs
The purpose of the site is to be a resource for people who want to find a good doctor. Where else can you find out what others think of your doctor? When choosing a doctor, wouldn’t you like some information first? It also gives you, the user, a place to voice your opinion. Your opinion will help others find a good doctor. - RealMentalHealth
RealMentalHealth.com is the first social networking site focusing on mental health treatment and wellness. The online community includes individuals, their family members, loved ones and friends who want to easily and interactively obtain knowledge about symptoms and treatments in a supportive community environment. - Real women on health
Welcome to our community where women support each other in being their own best health and wellness advocate. - Real Self
Get the real story about cosmetic treatments from real people and great doctors. - RevolutionHealth
RevolutionHealth.com, a free, comprehensive health and medical information site, specifically designed with the Family’s Chief Medical Officer — women and other caregivers — in mind. RevolutionHealth.com offers best-of-breed health information as well as more than 125 online tools aimed at helping individuals take control of their well-being.” Includes multiple support groups and blogs for various diseases. - Rheumatology Channel
Developed and monitored by board-certified physicians, RheumatologyChannel provides comprehensive, trustworthy information about rheumatic and musculoskeletal conditions and diseases, such as arthritis, gout, and lupus. - rVita
rVita’s mission is to help people heal themselves with the help of Integrative, Complementary and Alternative Medicine. - RX Mole
Rx Mole is an independent community for people to network together to share prices on local prescription drugs. Each member can confidentially submit or look up prices online. Know the price before traveling to a pharmacy. - Schizophrenia.com
A non-profit community providing in-depth information, support and education related to schizophrenia, a disorder of the brain and mind - Sleep Disorder Connect
Whether you have been diagnosed with sleep apnea or insomnia or another sleep disorder, we make it easy to start conversations, share treatments, read and post product recommendations, and much more.” Site is in Beta. - SoberCircle
is a friendly and feature-rich online recovery community. It is a “home away from home” for people in recovery or those considering recovery, and their family and friends. - Spark People
This site really is free– with no strings attached. Over 5 million people have joined SparkPeople to lose weight and make healthy lifestyle changes. Major media outlets like Good Morning America, The Today Show, and People Magazine regularly feature successful SparkPeople members and talk about how this is a completely free site.” “Best Health Website” in 2006, 2007, and 2008 according to Business Week. - StopAfib.org
Our goal is to provide you with information and perspectives about living with atrial fibrillation, and to help you find an atrial fibrillation treatment or cure. We’re about patients helping patients, providing information, education, and resources. We’re here to help you overcome your atrial fibrillation. You are not alone. - SugarStats
SugarStats provides online diabetes management, community support and collaborative sharing to motivate and improve health.” Paid service. - Take This Life
Welcome to TakeThisLife.com, the Internet’s most unique depression forum. Here you will find people who will listen. More importantly, here you will find people who will care. You can take this life and improve it. We can help. - Teen Connector
Private community for teens with cancer, sponsored by Teva. - This is MS
This is MS is an unbiased, unaffiliated site dedicated to eradicating Multiple Sclerosis. We offer an open-minded approach to *all* potentially viable treatments, ranging from the FDA-approved disease-modifying drugs such as Copaxone to alternative treatments such as Low Dose Naltrexone. - Traineo
Traineo helps you lose weight by letting you track your progress through a unique way of getting friendly motivation. The concept is simple: you sign up and choose up to 4 friends or members of your family to receive weekly email updates on how you’re doing. - Tudiabetes
A social network for support, education, and sharing the steps taken every day to stay healthy while living with this very serious condition. - Upopolis
Upopolis is a private social utility that connects young hospital patients to their family, friends and school network. - Vitals
At some point in our lives, we all will need to go to the doctor. Perhaps for a mild problem, or perhaps for a serious one. Vitals was created to give consumers the tools — for the first time — to make informed decisions about which doctor to choose. Our web site offers you a variety of ways to find a doctor that’s right for you. - Web MD health exchange
Introducing a place where you can get help and give help within WebMD, the most trusted leader in online health information. - WEGO Health
WEGO Health is the home of Health Activists – vigorous advocates, avid connectors, daily contributors and social media opinion leaders who bring the expertise of having been there, survived that. - What now
Join a community of 1000s of people affected by cancer and chat, blog, post to the forums, join support groups, share photos and videos and much more. - WiserTogether
WiserTogether was born out of the simple idea that technology can help people facing challenging situations to make informed decisions that give them peace of mind. Making decisions without adequate information is stressful – especially when the health of you or your baby is at stake.
Blogs
A blog is a type of website, usually maintained by an individual with regular entries of commentary.
- Beating Social Anxiety
Here's a free e-book that you should not miss. It's a compilation of quotes from the best contemporary minds. It's inspiring. It will make you stand up from your chair and make a difference. - Brass and Ivory
Welcome to Brass and Ivory where discussions of health policy and big pharma are sprinkled with a little multiple sclerosis and music. - ButYouDontLookSick
Christine Miserandino is a writer, blogger, speaker and patient advocate from NY. She also happens to be someone who is living with Lupus. Her writing has been featured in numerous newspapers, magazines, medical newsletters and television media. - Confessions of a CF Husband
Read Nathans touching story of his life with Tricia, an Cystic Fibrosis sufferer. - CysticLife
Join the course. Be the cure. - Diabetes 24-7
For people who manage living, one blood sugar at a time - Diabetes Mine
I think I can, I think I can… I know I can, I know I can… - Disruptive Women in Healthcare
To serve as a platform for provocative ideas, thoughts, and solutions in the health sphere. We recognize that to accomplish this, we need to call on experts outside of the health industry. - Duncan Cross
I write primarily on health care from the perspective of a frequent and heavy user of that system. More broadly, this blog is about being ill, and anything relevant to that experience. - Free my brain form Migraine This is my journal of living with Migraine and other chronic illness. Trying to live well, to live a purposeful life, with chronic illness, since I don't get the choice of living one without it!
- In Sickness and In Health: A Place For Couples Dealing with Illness
In November, 1999 I was whacked with a mysterious chronic pain syndrome that took me out of my life. With the help of my husband, my dog, and a combination of western and alternative approaches, I have a new life that includes working, writing, mountain climbing, smiling, and managing pain. - Lemonade Life
The journey of a twentysomething in New York City living with type 1 diabetes. - Look Me In The Eys: About John Elder Robinson
John Elder Robison is free range Aspergian male, having grown up in the 1960s before the diagnosis existed. Today, he has claimed his spot on the autism spectrum and he's also an adjunct professor in the department of Communication Sciences and Disorders at Elms College in Chicopee, Massachusetts. - The New Life of e-Patient Dave
In 2007, supported by an extraordinary team of family, friends, and medical staff, I stomped the snot out of a nasty cancer that was on its way to killing me. I've since learned that the way I did it has a lot in common with the advice of the "e-patients" movement, so I've changed my blogger name from Patient Dave to e-Patient Dave. - Ninjabetic
I was diagnosed with Type 1 when I was 17 years old. It was October 2nd 1990 and my life has never been the same. - Postpartumprogress.com
Katherine Stone is a nationally-recognized, award-winning advocate for women with perinatal mood and anxiety disorders. Rhymes With Migraine I'm a 26-year-old woman learning to live well with Chronic Migraines, Idiopathic Intracranial Hypertension, Chronic Daily Headache and Irritable Bowel Syndrome. I'm also gluten-free. - Running for My Life: Fighting cancer one step at a time
This blog is about falling down and getting up, coping and coming back. I was diagnosed and treated for leukemia (AML) in 2003, after feeling winded while running a 10-K road race. Treated and transplanted, I got back to running, tennis and biking. - Six until me
Hi! I'm Kerri Morrone Sparling. I was diagnosed with type 1 diabetes on September 11, 1986. For much of my life, I was the only diabetic I knew. - Survive the journey
Rare Disease Sufferers Connect with Internet - Vicarious Therapy
Sharing some of what I talk about, and learn, in my private therapy sessions. I am blessed with a wonderfully supportive psychiatrist who provides me with both medication advice and therapy. I am hoping my experiences in my sessions can help someone else.
Facebook is a global social networking website
- Acuvue
See why ACUVUE® Brand lenses are #1 prescribed by eye doctors, in the U.S. and around the world, for the way they make you look, perform, and feel. - Addressing Psoriasis™
Addressing Psoriasis™ was developed to inspire people with plaque psoriasis to actively manage their condition, be more confident and not allow the condition to inhibit their everyday style. - ADHD Allies
New online community for and about adults with Attention Deficit Hyperactivity Disorder (ADHD). - AstraZeneca Community Connections
We’ve created a range of important programs to promote healthy communities, including partnering with patient-focused organizations dedicated to disease awareness and prevention, research and education, access to healthcare, and more. Some of these groups include community healthcare service providers, civic groups, nonprofit research organizations, and public policy organizations. - Changing Possibilities in Hemophilia
Changing Possibilities in Hemophilia® is a community to connect you to individuals and families living with hemophilia with inhibitors. Sponsored by Novo Nordisk Inc., - Donate Life America
Welcome to the official Donate Life America® Facebook page where you can learn how to change someone’s world by registering to be an organ donor.” This page is sponsored by Astellas Pharma, makers of Prograf, an immunosuppression regimen for liver, kidney and heart transplant patients. - Epilepsy Advocate
To offer the knowledge and support needed to help people affected by epilepsy take an active role in their treatment and become an advocate for their health. - Johnson & Johnson
This page is for discussions about Johnson & Johnson. While community members can make comments, we reserve the right to remove those that are off-topic, abusive or that are spam. Product questions should be put to our companies. - Labs are Vital
Labs Are Vital™ exists to support laboratory professionals everywhere by recognizing and celebrating their contributions and extending the lab's influence within the health care community. - MS Champions
MS Champions Unite to Fight MS, brought to you by the sponsors of MS LifeLines®, connects you with National MS Society Walk MS walkers, Bike MS cyclists and others who are coming together in the fight against MS. - Strong at Heart
Bayer Healthcare LLC, the maker’s of Bayer Aspirin and WomenHeart, the nation’s only national organization dedicated solely to promoting women’s heart health, have teamed up to create this page to provide information, inspiration and hope to the hundreds of thousands of women living with heart disease, their families and friends